Patient Advocacy Resources
The patient advocacy resources provided below are intended to give patients and caregivers the information and support that they need throughout the cancer treatment process. The organizations chosen for this section were selected based on their ability to provide clear, up-to-date, accessible information that may better inform patient and caregiver decisions and choices.
General Cancer Information Resources
- American Cancer Society - The American Cancer Society (ACS) is a community-based voluntary health organization headquartered in Atlanta, GA. Its website offers information on different types of cancer, prevention and early detection, treatment, statistics, research news, and community activities.
- American Cancer Society: Cancer Action Network - ACS CAN, the nonprofit, nonpartisan advocacy affiliate of the American Cancer Society, supports evidence-based policy and legislative solutions designed to eliminate cancer as a major health problem. ACS CAN works to encourage elected officials and candidates to make cancer a top national priority. ACS CAN gives ordinary people extraordinary power to fight cancer with the training and tools they need to make their voices heard.
- Cancer Hope Network - To provide one-on-one support to people undergoing treatment for cancer and to their families. We provide this support by training individuals who have recovered from cancer and matching them with cancer patients currently undergoing a similar experience. Through this matching process, we strive to instill hope and to make a difference in their fight against cancer.
- Cancer Support Community - The Cancer Support Community (CSC) aims to ensure that all people who are impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. The CSC —the largest professionally led nonprofit network of cancer support worldwide—aims to achieve its mission through three areas: direct service delivery, research, and advocacy. The organization includes an international network of Affiliates that offer the highest quality social and emotional support for people impacted by cancer, as well as a community of support available online and over the phone.
Direct Patient Support
- CancerCare - CancerCare is a nonprofit organization that provides free, professional support services for anyone affected by cancer. Services at CancerCare are offered by professional oncology social workers and include telephone, online and face-to-face counseling, support groups, education, publications, and financial and co-payment assistance.
Ovarian Cancer Resources:
- The Clearity Foundation - The Clearity Foundation is a group of scientists, physicians and volunteers who feel passionately about changing the paradigm for ovarian cancer treatment in hope of providing more cures today. The Clearity Foundation was launched in 2008 to help ovarian cancer patients and their physicians make better-informed treatment decisions based on molecular profiling of tumors. The Clearity Foundation aims to change the paradigm for ovarian cancer treatment from a trial-and-error approach to one that individualizes therapy selection based on each patient’s unique tumor molecular profile. Patient support services include lab test coordination, tumor blueprint interpretation, and clinical trial identification, all of which are made available free of charge.
- Colorado Ovarian Cancer Alliance - The mission of the Colorado Ovarian Cancer Alliance (COCA), is to provide support to those affected by ovarian cancer, and to promote awareness and early detection of ovarian cancer through advocacy and education.
- Foundation for Women’s Cancer - The Foundation for Women’s Cancer (FWC) supports research, education and public awareness of gynecologic cancers.
- FORCE - Facing Our Risk of Cancer Empowered (FORCE) aims to improve the lives of individuals and families affected by hereditary breast, ovarian, and related cancers. In an effort to accomplish this mission, FORCE creates awareness by supplying information and support to its community; it also advocates for and supports research for hereditary breast, ovarian, and related cancers.
- National Ovarian Cancer Coalition - The mission of the National Ovarian Cancer Coalition (NOCC) is to raise awareness and promote education about ovarian cancer. The Coalition is committed to improving the survival rate and quality of life for women with ovarian cancer. The NOCC has national programs and local Chapter initiatives and provides information to assist patients with newly diagnosed ovarian cancer with their disease; they also have programs and resources that aim to provide hope to survivors and support to caregivers
- Ovarcome - To raise global awareness, to fund research in search of cures, and to provide financial support to underprivileged women in the U.S. as well as developing nations in their valiant fight against ovarian cancer.
- Ovarian Cancer Research Fund Alliance - The Ovarian Cancer Research Fund (OCRF) and the Ovarian Cancer National Alliance (OCNA) have led the way in advocacy, research and support for patients and their families for over 22 years. As of January 2016, both organizations joined forces to create OCRFA, the largest global organization dedicated to advancing ovarian cancer research while supporting women and their families. The mission of the OCRFA is to advance private research, advocate for increased federal research and money, policy that gives women access to the services they need, and supporting women and their families and caregivers before, during, and after a diagnosis.
- Sandy Rollman Ovarian Cancer Foundation - The Sandy Rollman Ovarian Cancer Foundation aims to unite with communities to work together to promote awareness about ovarian cancer and to advocate for early diagnostic testing. The Foundation also advocates for more effective treatments and aims to raise money to help advance research towards a cure. The Foundation is a partner-member organization of the Ovarian Cancer National Alliance (OCNA).
Prostate Cancer Resources
- Malecare - Founded in 1997, Malecare is America’s leading men’s cancer survivor support and advocacy national nonprofit organization. We are a dynamic, nimble and cutting-edge company, striving to be first in understanding and implementing new technology in service to our cancer survivor population. Malecare is a horizontally organized nonprofit, managed by oncologists, psychologists and social workers.
- Men’s Health Network (MHN) - (MHN) is a national non-profit organization whose mission is to reach men, boys, and their families where they live, work, play, and pray with health awareness and disease prevention messages and tools, screening programs, educational materials, advocacy opportunities, and patient navigation.
- Prostate Cancer Foundation - The Prostate Cancer Foundation (PCF) is the world’s leading philanthropic organization funding and accelerating prostate cancer research. By connecting patients, loved ones, care providers, and scientists to critical updates, new developments, best practices, and the latest news from the treatment pipeline, pcf provides hope for men diagnosed with prostate cancer
- Prostate Conditions Education Council (PCEN) - As the leading innovative organization, saving and improving the lives of men and their loved ones, PCEC SET the PACE in early detection, research, education and awareness for prostate cancer and all prostate conditions.
- The Prostate Health Education Network (PHEN) - To eliminate the African American prostate cancer disparity. Black men in the United States have the nation's highest prostate cancer incidence and mortality rates. PHEN's mission also includes advocacy efforts to increase the overall support and resources to wage a war on prostate cancer that will eventually lead to a cure for the disease for the benefit of all men.
- Us TOO International - Us TOO was founded by—and continues to be governed by—people directly affected by prostate cancer. We’re a nonprofit established in 1990 that serves as a resource of volunteers with peer-to-peer support and educational materials to help men and their families/caregivers make informed decisions about prostate cancer detection, treatment options and related side effects.
- ZERO: The End of Prostate Cancer - ZERO’s mission is to end prostate cancer. For the past twenty years, we have saved lives and stopped pain and suffering by advancing research, encouraging action, and providing education and support to men and their families.
Bladder Cancer Resources
- Bladder Cancer Awareness Network - BCAN was founded in 2005 and is the only national advocacy organization devoted to advancing bladder cancer research and supporting those impacted by the disease. BCAN is on the front-lines advocating for greater public awareness and increased funding for research to identify effective treatments and eventually, a cure for bladder cancer.
NOTE: These links are provided as a convenience, and by including these links, we do not imply endorsement of the content of the external site. The content of these sites are managed by their owners and we have no control nor do we assume responsibility or liability for this third-party content.