The resources provided below are intended to give patients and caregivers the information and support that they need throughout the cancer treatment process. The organizations chosen for this section were selected based on their ability to provide clear, up-to-date, accessible information that may better inform patient and caregiver decisions and choices.
General Cancer Information Resources
- American Cancer Society – The American Cancer Society (ACS) is a community-based voluntary health organization headquartered in Atlanta, GA. Its website offers information on different types of cancer, prevention and early detection, treatment, statistics, research news, and community activities.
- CancerCare – CancerCare is a nonprofit organization that provides free, professional support services for anyone affected by cancer. Services at CancerCare are offered by professional oncology social workers and include telephone, online and face-to-face counseling, support groups, education, publications, and financial and co-payment assistance.
- CancerGRACE – Cancer Global Resource for Advancing Cancer Education (GRACE) is a nonprofit organization that was developed to improve patient access to information about optimal cancer management. GRACE uses blogs, videos, audio interviews, and web-based lecture materials through its web site to provide materials directly to patients.
- Cancer Hope Network – To provide one-on-one support to people undergoing treatment for cancer and to their families. We provide this support by training individuals who have recovered from cancer and matching them with cancer patients currently undergoing a similar experience. Through this matching process, we strive to instill hope and to make a difference in their fight against cancer.
- Cancer Research Foundation – Our mission is to advocate and provide support for the prevention, early detection, diagnosis, treatment, and survivorship of cancer through patient assistance, education and research. We conduct our mission by providing financial assistance to cancer patients and families; access to patient assistance programs through a comprehensive network of financial assistance organizations; access to relevant and current cancer information and tools for cancer patients, families, and caregivers; funding for research; focusing on nursing research and supportive care; & capacity building for financial assistance organizations.
- CancerresearchUK – Cancer Research UK is leading pioneering, life-saving research; they are also involved in fundraising and developing evidenced-based policies that can help inform government decisions relating to cancer.
- Cancer Support Community – The Cancer Support Community (CSC) aims to ensure that all people who are impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. The CSC—the largest professionally led nonprofit network of cancer support worldwide—aims to achieve its mission through three areas: direct service delivery, research, and advocacy. The organization includes an international network of Affiliates that offer the highest quality social and emotional support for people impacted by cancer, as well as a community of support available online and over the phone.
- National Cancer Institute (NCI) – The National Cancer Institute is part of the U.S. National Institutes of Health (NIH). Established in 1937, the NCI is the U.S. government’s principal agency for cancer research and training. The NCI website provides comprehensive information on cancer types, treatment, prevention, causes, clinical trials, statistics, support, research and funding, news, and additional resources. A list of NCI designated centers by state is available at: http://www.cancer.gov/research/nci-role/cancer-centers/find
Current information on federally and privately supported clinical research is available at: www.clinicaltrials.gov
- National Coalition for Cancer Survivorship – The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the United States researches, regulates, finances, and delivers quality cancer care.
- OncoLink – OncoLink was created by University of Pennsylvania cancer specialists to give cancer patients, families, health care professionals, and the general public access to cancer-related information free of charge. The website includes information about specific types of cancer, updates on treatments, news about research advances, and additional support.
- Orphanet – Orphanet is a global reference portal that provides information about rare diseases and orphan drugs. Orphanet’s aim is to help improve the diagnosis, care, and treatment of patients with rare diseases.
- StandUpToCancer – Stand Up To Cancer (SU2C) is a groundbreaking initiative created to accelerate innovative cancer research that will get new therapies to patients quickly to save lives. SU2C has as unique funding model that encourages collaboration and innovation through two new types of scientific grants. Dream Team grants are awarded to multi-institution groups of scientists who work collaboratively, rather than competitively, to develop new treatments quickly. SU2C also offers Innovative Research Grants that support groundbreaking high-risk, high-impact cancer research projects.
Ovarian Cancer Resources
- The Clearity Foundation – The Clearity Foundation is a group of scientists, physicians and volunteers who feel passionately about changing the paradigm for ovarian cancer treatment in hope of providing more cures today. The Clearity Foundation was launched in 2008 to help ovarian cancer patients and their physicians make better-informed treatment decisions based on molecular profiling of tumors. The Clearity Foundation aims to change the paradigm for ovarian cancer treatment from a trial-and-error approach to one that individualizes therapy selection based on each patient’s unique tumor molecular profile. Patient support services include lab test coordination, tumor blueprint interpretation, and clinical trial identification, all of which are made available free of charge.
- FORCE – Facing Our Risk of Cancer Empowered (FORCE) aims to improve the lives of individuals and families affected by hereditary breast, ovarian, and related cancers. In an effort to accomplish this mission, FORCE creates awareness by supplying information and support to its community; it also advocates for and supports research for hereditary breast, ovarian, and related cancers.
- National Ovarian Cancer Coalition – The mission of the National Ovarian Cancer Coalition (NOCC) is to raise awareness and promote education about ovarian cancer. The Coalition is committed to improving the survival rate and quality of life for women with ovarian cancer. The NOCC has national programs and local Chapter initiatives and provides information to assist patients with newly diagnosed ovarian cancer with their disease; they also have programs and resources that aim to provide hope to survivors and support to caregivers.
- Ovarian Cancer Research Fund Alliance (OCRFA) – The Ovarian Cancer Research Fund (OCRF) and the Ovarian Cancer National Alliance (OCNA) have led the way in advocacy, research and support for patients and their families for over 22 years. As of January 2016, both organizations joined forces to create OCRFA, the largest global organization dedicated to advancing ovarian cancer research while supporting women and their families. The mission of the OCRFA is to advance private research, advocate for increased federal research and money, policy that gives women access to the services they need, and supporting women and their families and caregivers before, during, and after a diagnosis.
- Sandy Rollman Ovarian Cancer Foundation – The Sandy Rollman Ovarian Cancer Foundation aims to unite with communities to work together to promote awareness about ovarian cancer and to advocate for early diagnostic testing. The Foundation also advocates for more effective treatments and aims to raise money to help advance research towards a cure. The Foundation is a partner-member organization of the Ovarian Cancer National Alliance (OCNA).
Prostate Cancer Resources
- Urology Care Foundation – The Urology Care Foundation advances urologic research and education. We work with health care providers, researchers, patients and caregivers to improve patients' lives. The Urology Care Foundation is the official foundation of the American Urological Association.
- His Prostate Cancer – HisProstateCancer blends general information with real-life experience and is written specifically for wives, partners and family members. All articles are thoroughly researched using reputable and respected medical sources, which are listed on each page. This information is meant to be used as a starting point for meaningful discussions with your healthcare team.
- Malecare – Founded in 1997, Malecare is America’s leading men’s cancer survivor support and advocacy national nonprofit organization. We are a dynamic, nimble and cutting edge company, striving to be first in understanding and implementing new technology in service to our cancer survivor population. Malecare is a horizontally organized nonprofit, managed by oncologists, psychologists and social workers.
- Prostate Cancer Research Institute – The Prostate Cancer Research Institute mission is to improve the quality of prostate cancer patients and caregivers lives by supporting research and disseminating information that educates and empowers patients, families and the medical community.
- Prostate Cancer Foundation – The Prostate Cancer Foundation (PCF) is the world’s leading philanthropic organization funding and accelerating prostate cancer research. By connecting patients, loved ones, care providers, and scientists to critical updates, new developments, best practices, and the latest news from the treatment pipeline, PCF provides hope for men diagnosed with prostate cancer.
- Prostate Cancer International – Prostate Cancer International will transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.
- Prostate Conditions Education Council (PCEC) – As the leading innovative organization, saving and improving the lives of men and their loved ones, PCEC SET the PACE in early detection, research, education and awareness for prostate cancer and all prostate conditions.
- Prostate Health Education Network (PHEN) – To eliminate the African American prostate cancer disparity. Black men in the United States have the nation's highest prostate cancer incidence and mortality rates. PHEN's mission also includes advocacy efforts to increase the overall support and resources to wage a war on prostate cancer that will eventually lead to a cure for the disease for the benefit of all men.
- The Prostate Net – The core objective of The Prostate Net's mission is to develop and maintain an interactive matrix of educational tools and services that will educate consumers most at-risk from a diagnosis of prostate cancer, inform the community on other diseases and conditions of negative impact, motivate consumers to make informed choices as to healthcare and lifestyle management, Lay the foundation for on-going health care information dissemination and interaction between the community and medical centers, and create an interactive network to maximize broad scale, mass communications of actionable health messages.
- Us TOO – Us TOO was founded by—and continues to be governed by—people directly affected by prostate cancer. We’re a nonprofit established in 1990 that serves as a resource of volunteers with peer-to-peer support and educational materials to help men and their families/caregivers make informed decisions about prostate cancer detection, treatment options and related side effects.
- Women Against Prostate Cancer – Women Against Prostate Cancer (WAPC) is a nonprofit organization developing a grassroots network of women volunteers who have been adversely affected by prostate cancer. The organization at its core has advocates, widows, healthcare professionals, and caregivers working in collaboration to bring an end to prostate cancer. We aim to provide support for women and their families affected by prostate cancer through providing access to resources and supportive programming. WAPC is a tool for women to harness the power of their voices as being affected by prostate cancer and advance national and state-based policy, media, and educational efforts. WAPC was established in 2007.
- ZERO – ZERO’s mission is to end prostate cancer. For the past twenty years, we have saved lives and stopped pain and suffering by advancing research, encouraging action, and providing education and support to men and their families.
NOTE: These links are provided as a convenience, and by including these links, we do not imply endorsement of the content of the external site. The content of these sites are managed by their owners and we have no control nor do we assume responsibility or liability for this third-party content.